Families with a child who has a congenital heart defect or acquired childhood heart disease. This includes parents, siblings, grandparents etc.
Teenagers and Adults with CHD who would like to join a forum for discussion.
To any individual or group concerned with the issues of congenital heart defects who have a specific interest in helping raising awareness and funding.
To any individual involved in the issues of congenital heart defects and acquired childhood heart disease, be they from a medical background or the political arena.
Membership offers you
A seasonal Newsletter to keep you informed and updated;
Family Support Coordinators – present in hospital to offer you support at critical times, and by phone and email as required;
Regular coffee mornings so that you can meet and share experiences with other families, these can be held either in hospital or in your local area, encouraging a local network of support for you and your family;
Opportunities for your heart child to attend events with other heart children;
Opportunities to attend special afternoon or evening information events by invited medical practitioners and other professionals as they arise.